Anybody out there have vasc..

Just curious how many people have this uncommon disease and what treatment you have received or are receiving? Have you managed to get it into remission at any point? Did it return? I have leukocytoclastic vasculitis only involving the skin but interested in anyone's response with any kind of vasculitis. Did they ever figure out what caused it? Any and all info someone has will be appreciated. Thanks

I have vasculitis for the past 2-3 years. I think I got an allergic reaction to a medication I was taking. I just woke up one morning and started limping. I went to my doctor and had blood work done and basically it showed lots of imflamation. I went to a RH Specialist and had a MRI and he also sent me to a Neurologist. Basically I was put on Predisone. I still had symptoms even though my inflamation was controlled. I stopped seeing him because he wanted to put me on lots of muscle relaxers and I still had pain but nothing like what I had in the beginning. I can't walk up stairs because it flares up the inflamation in my legs. I also have it in my arms.

My son-in-law has it in the brain. He's been getting chemo for the last year and a half along with prednisone. It's horrible, especially in the brain. See good link below for more info.